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There are organizations dedicated to supporting you

Not a real patient.

There are worldwide groups and organizations dedicated to supporting people with primary biliary cholangitis (PBC), formerly known as primary biliary cirrhosis.

Follow the links below to find out more about each group.

Organizations dedicated to PBC

PBCers Organization

A US-based organization whose mission is to unite people diagnosed with PBC. The organization helps patients and their caregivers, friends, and families cope with PBC and improve the quality of their lives through education and support.

Address: PBCers Organization c/o Carol Roberts, 1014A Greenleaf Road, Rochester, NY 14612

Email: pbcers@pbcers.org

PBCers.org

Canadian PBC Society

A Canadian-based organization with regional groups that provide support and encouragement, education, and information, and fundraising for research on PBC.

Address: Canadian PBC Society, 4936 Yonge Street, Suite 221, Toronto, Ontario M2N6S3

Email: info@pbc-society.ca

PBC-Society.ca

PBC Foundation

A UK-based patient organization with nearly 10,000 members that provides support to people around the world who are living with PBC, as well as their families and friends.

Address: The PBC Foundation, 2 York Place, Edinburgh EH1 3EP

Email: info@pbcfoundation.org.uk

PBCFoundation.org.uk

Organizations with PBC-related information

American Liver Foundation

A national organization for patients, families, and professionals that is dedicated to the prevention, treatment, and cure of liver diseases such as PBC.

Address: American Liver Foundation, 39 Broadway, Suite 2700, New York, NY 10006

LiverFoundation.org

ClinicalTrials.gov (US National Institutes of Health)

A US government website that serves as a registry and database for clinical studies that happen around the world.

ClinicalTrials.gov

The Community Liver Alliance

The Community Liver Alliance builds bridges by connecting patients to healthcare providers and services; creating and conducting screenings, educational workshops, and seminars; coordinating support groups; investing in local research; sponsoring a patient assistance fund; supporting the Children’s Hospital of Pittsburgh youth transplant camp; working with local media and community groups to increase awareness of liver wellness and liver disease; and meeting with local, state, and federal policy makers to initiate positive change.

Address: Community Liver Alliance, 100 W. Station Square Drive, Suite 1930, Pittsburgh, PA 15219

Phone: 412-501-3CLA

Email: support@communityliveralliance.org

communityliveralliance.org

Mayo Clinic

A nonprofit medical practice and research group that provides information about a variety of medical conditions, including PBC.

MayoClinic.org

MedicineNet

A website written by doctors that provides medical information on various topics, including PBC.

MedicineNet.com

MedlinePlus

A website that provides health information for people with PBC and other diseases as a service of the US National Library of Medicine.

Address: US National Library of Medicine, 8600 Rockville Pike, Bethesda, MD 20894

MedlinePlus.gov

National Digestive Diseases Information Clearinghouse

A website that provides information on digestive diseases, including studies recruiting people with liver disease, provided by the National Institute of Diabetes and Digestive and Kidney Diseases.

Address: National Digestive Diseases Information Clearinghouse, 2 Information Way, Bethesda, MD 20892-3570

NIH.gov

National Organization for Rare Disorders (NORD)

An organization that provides services, such as advocacy and education, to help improve the lives of people with rare diseases.

Address: National Organization for Rare Disorders, 7 Kenosia Avenue, Danbury, CT 06810

RareDiseases.org

The University of Chicago Medicine Liver Disease Patient Resources

An online library containing information about the liver and liver disease, including information for people with PBC.

Address: University of Chicago Medicine, 5841 S. Maryland Avenue, Chicago, IL 60637

UChicagoMedicine.org

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