Support

You are not alone—reach out to others to find support in your area

There are groups and organizations dedicated to supporting people with primary biliary cholangitis (PBC), formerly known as primary biliary cirrhosis, all over the world. Follow the links below to find out more about each group.

PBCersAmerica

The largest PBC online support group, with almost 3000 members worldwide

Address: PBCers Organization, 1430 Garden Road, Pearland, TX 77581

Email: PBCersOrg96@aol.com

PBCers.org

PBC SocietyCanada

A Canadian organization with regional groups that provide support and encouragement, education and information, and fundraising for research on PBC

Address: Canadian PBC Society, 4936 Yonge Street, Suite 221, Toronto, Ontario M2N6S3

Email: info@pbc-society.ca

PBC-Society.ca

PBC FoundationBritan

A UK-based patient organization with nearly 10,000 members that provides support to people around the world who are living with PBC, as well as their families and friends

Address: The PBC Foundation, 2 York Place, Edinburgh EH1 3EP

Email: info@pbcfoundation.org.uk

PBCFoundation.org.uk

Visit the following websites for more information about PBC

American Liver Foundation

A national organization for patients, families, and professionals that is dedicated to the prevention, treatment, and cure of liver diseases such as PBC

Address: American Liver Foundation, 39 Broadway, Suite 2700, New York, NY 10006

LiverFoundation.org

Clinical Trials (U.S. National Institutes of Health)

A US government website that serves as a registry and database for clinical studies that happen around the world

ClinicalTrials.gov

Mayo Clinic

A nonprofit medical practice and research group that provides information about a variety of medical conditions, including PBC

MayoClinic.org

Medline Plus

A website that provides health information for people with PBC and other diseases as a service of the US National Library of Medicine

Address: US National Library of Medicine, 8600 Rockville Pike, Bethesda, MD 20894

MedlinePlus.gov

Medicine Net

A website written by doctors and aimed at people with PBC and their caregivers, and includes comments from people with PBC

MedicineNet.com

National Organization for Rare Disorders (NORD)

An organization that provides services, such as advocacy and education, to help improve the lives of people with rare diseases

Address: National Organization for Rare Disorders, 55 Kenosia Avenue, Danbury, CT 06610

RareDiseases.org

National Digestive Diseases Information Clearinghouse

A website that provides information on digestive diseases, including studies recruiting people with liver disease, provided by the National Institute of Diabetes and Digestive and Kidney Diseases

Address: National Digestive Diseases Information Clearinghouse, 2 Information Way, Bethesda, MD 20892-3570

NIH.gov

The University of Chicago Medicine Liver Disease Patient Resources

An online library containing information about the liver and liver disease, including information for people with PBC

Address: University of Chicago Medicine, 5841 S. Maryland Avenue, Chicago, IL 60637

UCHospitals.edu