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Name: Diana

Age: 68

Location: Arizona

Year diagnosed with PBC: 2014

My name is Diana. I found out that I have primary biliary cirrhosis (PBC) a year after my daughter Nishele was diagnosed with it. Now I am doing whatever I can to treat the disease so I can spend a lot more time with my family.

Interview conducted in April 2015, before the widespread adoption of the term "primary biliary cholangitis."

Name: Diana

Age: 68

Location: Arizona

Year diagnosed with PBC: 2014

My name is Diana. I found out that I have primary biliary cirrhosis (PBC) a year after my daughter Nishele was diagnosed with it. Now I am doing whatever I can to treat the disease so I can spend a lot more time with my family.

Interview conducted in April 2015, before the widespread adoption of the term "primary biliary cholangitis."

This is my Story.

I am retired from factory work, but now my job is to take care of my parents who are in their 90s. Family is very important to me, and I feel good about being able to help them every day. Besides caring for them, I also like spending time with friends and being active.

“Sometimes I say to my parents, ‘I’ll be back in a few hours, but I want to explore. I want to go explore today.’”

— Diana

Having PBC makes me worried that I won’t be able to lead the life I want and spend time with family. Since my daughter also has PBC, she sends me articles and information about the disease. I use that information to work with my doctors to make sure I am getting the best care possible.

Sometimes it feels like I have to work really hard to make sure my doctors are being proactive about my PBC. Back when I was first having symptoms, long before my diagnosis, it seemed like some doctors weren’t paying attention to my complaints.

“I talked to my doctor about the fatigue and he said, ‘Well, you’re not getting any younger.’ I thought, I’m not going to let somebody tell me that.”

— Diana

Now, before I go to see my doctor, I prepare questions to ask him using the information my daughter sends me about my PBC. I take my medicine and work with my doctor to manage my disease. I still have a lot to look forward to, and I don’t want my PBC to get in the way.